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Monday, January 28, 2008

Early Signs of Autism

In addition to the musings in this post, a brief list of resources on early signs of autism can be found in my post:
Early Detection of Autism


My friend Mama over at The Elmo Wallpaper wrote a post a while back about the feeling that she is holding her breath waiting for the MMR shot to be over and for everything to be ok. I remember that same feeling. I had seen the scary stories and videos on daytime talk shows about children who were "normal" (whatever that means, right?) and happy one day, and then just disappeared into autism after receiving their MMR vaccine. I remember waiting in the days and weeks after that vaccine, watching my son to make sure he wasn't suddenly showing signs of autism.

Eventually, I breathed a sigh of relief and forgot about it, because there was no change at all after the vaccine. My son was still smiling and loving, like autistic people clearly weren't. My son was not autistic. When professionals started suggesting my son was autistic, I thought, "Well, that can't be right. He's happy. He's loving. He's engaged in the world around him." Autistic people never smile and don't get enjoyment from anything. I've seen the videos! Happy, smiling, engaged baby=normal. Unhappy, tantruming, oblivious baby=autistic.

You are all encouraged to laugh now, both at the irony of me looking for signs of change that would indicate that an autistic child had come down with autism and at my ignorance of what autism really means. It makes me laugh big loud belly laughs every time I think of it.

And it does, I'll admit, leave me wondering about those children who "disappear." My son, like all children, has changed as he has grown, but he's never shifted in an unrecognizable way; he has simply, gradually, become more himself. That means I have had a different experience, and a (what?) friendlier, I suppose you'd say, relationship with autism, than parents who have seen a radical change. Autism has never been an enemy, some interloper who stole away the child I love; it's an inseparable part of the child I love, and it always has been.

I wonder, as I look back through the lens of my own experience, if those children show signs that are hard to detect: perhaps even harder to spot than the things I detected in retrospect. Or if they really were like my daughter, who has led me to exclaim almost constantly from the moment she was born, "Ah, this is what most people's experience with children is like!" In particular, I'm thinking of two articles I read at DrGreene.com: one on lack of early childhood gestures, such as pointing, in children with autism and the other on how children with Asperger's align their heads relative to their bodies as babies. In addition, the eye movements of autistic babies and toddlers show they look at faces differently, and the degree to which they do this can indicate the severity of their disability. We all notice if our children are walking and talking on time, but I know I had to go back and try to reconstruct what age my son first pointed (definitely not before age one) after I read articles like these, and I have to admit I have no idea what he would have done as a baby if I had tilted his body at a 45 degree angle and I don't really know what his eye movements looked like. Are there more subtle signs that we parents pick up on, or don't?

I've never had a worry in the world about my daughter's development, in spite of the fact that she had a mild speech delay of her own. Was I picking up on subtle signs? Or was I just reassured by the lack of all the (retrospectively) obvious ones my son showed? I don't know. But I'm grateful to have two kids who are both wholly themselves and always have been.



This has nothing to do with autism, but while I'm linking to Dr. Greene, I learned from him that dark chocolate really does cure what ails you: including coughs and diarrhea. Given that children's cough medicines have been shown to do more harm than good, that means my kids get chocolate when they're sick, and so do I. Who's the best mama?

15 comments:

  1. Interesting the way life trains us to see the truth in retrospect...I often find myself having that flashback-realization moment, just like in the movies.
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  2. There is nothing about me that needs to be or has been treated in direct relation to Asperger's. It's the things that tend to come along for the ride. The beauty of early detection is to lessen the impact of the things that may come with it and because of it. And the because of it, is just how over time, we can become alienated.

    I don't buy and have never bought the vaccine thing. Been pretty well laid to rest recently anyway, but I'm sure it will linger around, unfortunately. We had a huge debate on it not long ago. People have forgotten what it means with out vaccines. They have never seen anyone that has had polio, don't even know what an iron lung is. Give me the choice and I'll go a vaccine every time and I have. It runs in family’s, it’s genetic. I see it in mine and I think time and research will show it is correct.
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  3. It's not just the MMR that makes me hold my breath -- it's every shot. That's because my fears are not altogether rational. Like most Mama things, they are emotional, irrational, out of proportion, and wholly consuming at times, in part because I do believe it is genetic and I do believe it runs in my family. But at least I deal. And I'd never go without a vaccination for one of my kids. They even get flu shots.

    Your kids are definitely themselves, and it is such a blessing that you know that. You're a wonderful Mama.
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  4. Mary P Jones (MPJ)Jan 28, 2008 10:24 AM
    Postpaleo, I am totally with you. I think the vaccine link has no scientific basis (although I do think it will continue to linger) -- I don't remember exactly what I thought about it 6 years ago, when my son was getting his vaccines, but I remember that I did irrationally worry about it anyway based on media stories.

    But even if vaccines did "cause autism" I would obviously take autism, which I don't see as a bad thing, over polio any day.

    I think autism is genetic, especially given the similarities between my son and me -- and especially given the links I see in other families with autism.

    I'm hoping to write tomorrow about early intervention.
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  5. Mary P Jones (MPJ)Jan 28, 2008 10:30 AM
    Mama, hope I don't seem like I'm picking on you -- and sorry if I misremembered which vaccine you were talking about. I thought your post beautifully captured the fear we all have as parents of losing our children. It just happened to be what got me thinking down these lines.
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  6. Everyone benefits from your open eyes.
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  7. Oh, that accursed word "normal." The word comforts me as often as it vexes me.
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  8. You're the best mama!
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  9. My experience is much the same as yours. Three of my four children are on the Autistic spectrum. I didn't lose any of them. There have been small subtle signs along the way and I'm glad we now know what's up with some of the behaviours but I cherish them for their unique differences.
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  10. JUST ANOTHER ADDICTJan 29, 2008 01:46 AM
    You are, of course!
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  11. Slutty McWhoreJan 29, 2008 04:50 AM
    I had a client yesterday who mentioned he had a five-year-old son with Autism. He never mentioned much about his experiences with that. I'll have to ask when he comes back.

    And, yes, dark chocolate is great for nearly everything. It boosts your levels of dopamine, and makes you hornier! (Supposedly).
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  12. woman.anonymous7Jan 29, 2008 02:55 PM
    Trader Joe's Unsweetened Belgian Baking Chocolate. My son will actually eat this and I have learned to love it. We tried dark chocolate for coughs last time Son was sick and it really seemed to work. He slept really well with no cough medicine. But he had to eat quite a bit to get the right dose, and of course he was sick and it was super dark so sometimes he really didn't want to eat it all. But he doesn't get much candy otherwise, so he worked with it!
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  13. I really love what Lauri said. I men in all actuality, once you've got a diagnosis of Autism, to put yourself through hell and back, in the name of "Normal" has to be crazy. My sister stayed up, many a night researching, studying and so on. She had him on the Gluten Free diet, she gave him shots, she did this, she did that. It is only sad in the respect of, if you struggle with some form of acceptance.
    Ryan's speech is nominal but he loves to love, is a pleasant child and is quick as a whip, especially on the computer. He is 6 and has never been taught to read, yet he has been reading since I arrived in 2005.
    I suppose if you look at it as a tragedy, that's what it will be. But if you accept it, work through it, do what you can but never allow it to own you, it is a step in the right direction, huh?
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  14. Very interesting. Thanks.

    And I knew there was a good reason to eat chocolate!
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  15. The so-called changes after the shot could've been on their way anyway, just all part of the development process that goes in fits and starts in all children, but more so in autistic children as I understand it. Pass over the 70% Lindt.
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