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Wednesday, December 26, 2007

Thanks to Autistic Adults

Yesterday, I took the kids out to the park to play. As my son was running across the pavement to one of the play structures, he tripped and fell, banging his knee hard on the cement. He got up limping, his face scrunched, as it always is when he is really hurt, into a silent tearful grimace.

"Are you ok, buddy?" I asked.

He frowned at me, eyebrows lowered, held his hand out as if he were pushing me away and grunted, "MMmmhh!" and tried to limp away. Drat, that's right. He doesn't like acknowledging pain or negative emotions.

"Do you want to go home, buddy?" No answer, just a little boy half hopping, half limping away, crying.

I stood there in the cold park, wondering how badly his knee was hurt. It looked like a painful fall; he was crying; he wasn't putting much, if any, weight on it. I wanted to ask him a million more questions. I wanted him to tell me if he could bend the knee, and I wanted him to rate the pain on a scale of 1 to 10, and I wanted him to confirm that it was the knee and not the ankle, which looked like it might have been twisted too. And I wanted to ask him if I could get a look at it.

Then I thought of some of the autistic adults whose blogs I read: folks like Bev and Joel. I thought about how often they have written about how there are times when they can't speak, and I thought about how this was one of those times for my son. His knee still hurts, he can't talk yet, and talking to him will only overwhelm him. It's not an emergency. I can wait.

I stopped walking and stopped talking. I waited. Then I walked slowly up to him and pressed his left ear firmly to my body, covering his right ear with my hand. When he's upset, he likes pressure on his head. I stood there, silently holding his head, wondering if his knee was ok, waiting.

I stood there pressing his head to my body. I waited. His sister flitted past. She removed her jacket even though an icy wind was blowing, took off her gloves and put them in my purse, handed me her hat and ran off. She flitted back, teeth chattering. I helped her back into her winter wear with my spare hand. She flitted off again. I waited. I stood in the near empty park, watching my daughter run around, holding my son's head.

I released a little of the pressure on his head and moved my body away slightly. He clutched my skirt. I renewed the pressure. I waited. My daughter flitted back. "Are you ready to go home?" I asked. "No," they answered together. Ah, the power of speech had returned, at least for that one word. My son tried walking, but he was leaning on me with his feet at odd angles, so I called an end to time at the park, much to my son's clear, if non-verbal, displeasure. Speech finally returned at home, sitting down, after a comforting cup of milk.

I'm happy to report that the knee, while it looks bruised, seems otherwise ok, and he's definitely able to run on it again now. And to all the autistic adults out there who help me see things differently, a big thanks for getting all of us as smoothly as possible through our minor crisis at the park.

15 comments:

  1. I sleep with one hand firmly planted in the middle of my forehead, applying pressure. The other is usually floating around, clenched in a fist. I posted a picture one time showing a cat stretched out across me and me sleeping like that. Other then both of our bellys showing to the world, I got so many response's from people on the spectrum, saying that's exactly how they slept, it was a bit of a shock to me.

    Your son is lucky, so many parents don't understand the basics. Bravo to you!!
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  2. LadyBugCrossingDec 26, 2007 09:28 PM
    You did good... real good. It's hard to not ask and not know, but it's what he needs.
    There was a study done in Europe somewhere about autism and pressure. They have this awful looking contraption that puts pressure on the body and if the autistic person stays in it for a certain length of time each day, it seems to "cure" the autism. I saw this a long time ago on a news show...
    xo
    LBC
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  3. You done good! I love the connection you and your son have. I'm working with teaching that to the other people in my son't life (grandmas, teachers, etc.), that sometimes, especially if his anxiety is elevated, he just needs some "chill time" before he's ready to do anything- including speak. Awesome job.
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  4. Mary P Jones (MPJ)Dec 27, 2007 02:14 AM
    It just occurred to me as I was reading all your comments about the good work that I did, that it hardly would have looked that way to someone walking through the park. "Um, you appear to be smothering your son while your 4-year-old runs around in the cold in a t-shirt." ;)
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  5. Mary P Jones (MPJ)Dec 27, 2007 02:17 AM
    Ladybug, yes, pressure can help. Temple Grandin has written about inventing a device like what you described to apply pressure to her entire body. She says it helps soothe anxiety.
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  6. Sunshine MorningstarDec 27, 2007 03:09 AM
    You amaze me!
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  7. A good mom knows how to listen.
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  8. This really touched me. You're a good mom.
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  9. Thank you so much for sharing that bit of your life. Your patience must be hard earned!
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  10. LOVE what Karen said but want to "one up" it...a GREAT mom knows when to listen.

    Thanks for the example...
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  11. You rendered me speechless with this story. Thank you for making my day my friend!
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  12. vicariousrisingDec 27, 2007 12:55 PM
    This made me smile and think of my husband. I often ask him if he's run out of words. Sometimes I can't even get an affirming nod out of him. Waiting it all out usually is the best bet. I wonder if I should try putting pressure on his head.

    ...although I imagine I might get a little over enthusiastic about it if I were in the wrong mood.

    Wonderful post. People have a hard time understanding what is actually loving parenting for special needs kids. Mine has ADHD and also some major food allergies... some people act like we're evil for not allowing Snickers bars and limiting his caffeine intake and for medicating him. But a mother's gut knows when her child is suffering and when she is soothing. Or at least we keep trying until something works.
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  13. I'm glad that everything is ok and nothing is wrong with his knee or ankle.
    I think you handled it very well. Good for you !
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  14. I read somewhere that serenity is "peace in the midst of a storm" and that's what you demonstrated yesterday in the park with your son. If others watching would judge you poorly for your actions, shame on them. I'm glad to know your adult austistic friends have helped you develop wisdom to be present with your son and share your strength when his wavers, and I'm relieved to know his injuries aren't serious.
    Hugs and blessings,
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  15. Thanks to you. What an enlightening post! You're learning all the time, eh? And you're doing a great job ;)
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